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Att leva med kombinerad syn- och hörselnedsättning - vad spelar hörseln för roll?

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Title: Att leva med kombinerad syn- och hörselnedsättning - vad spelar hörseln för roll?
Other Titles: Living with combined vision and hearing loss: what difference does the hearing make?
Authors: Widmark, Jenny
Issue Date: 1-Oct-2021
Degree: Student essay
Keywords: kombinerad syn- och hörselnedsättning
information- och kommunikationsteknik
orientering och förflyttning
dual sensory loss
hearing aids
assistive listening devices
assistive vision devices
information- and communication technology
orientation and mobility
Abstract: Bakgrund: Personer med Usher typ 2 har medfödd hörselnedsättning och progredierande synnedsättning som oftast debuterar i ungdomsåren. Tidigare studier har visat att informationsinhämtning, kommunikation, orientering och förflyttning samt det psykosociala måendet påverkas hos personer som lever med kombinerad syn- och hörselnedsättning. Syfte: Syftet med den här studien var att utforska hur hörsel, hörapparater och olika hjälpmedel upplevs i det dagliga livet för personer med Usher typ 2. ... more
Description: Background: People with Usher type 2 have congenital hearing loss and acquired progressive visual impairment, which usually presents itself in adolescence. Previous studies have demonstrated that information, communication, orientation and mobility as well as psychosocial well-being are affected when living with combined vision- and hearing loss. Purpose: The purpose of this study was to explore how hearing, hearing aids and various assistive technical aids are experienced in the daily lives of people with Usher syndrome type 2. Method and materials: In this qualitative study, eight persons with Usher type 2, with an average age of 57 years participated. The data collection was conducted using semi-structured interviews with open questions. The material was analyzed according to qualitative content analysis with an inductive approach. Results: The result is based on four central areas: information, communication, orientation and mobility and also the psychosocial perspective. With a progressive visual impairment, increased uncertainty is described in the perception of spoken communication due to difficulties in reading lips and mimicry. Hearing aids are very important in communication. Technology and assistive devices have opened up opportunities to acquire information through hearing when there is not enough vision. It takes competence and training to learn how to use the hearing and various aids when vision is failing. Environmental factors such as light and sound environment are crucial. Actively using the hearing aids is energy-intensive, hence it is necessary to sometimes rest the hearing to “last” a whole day. When orienteering and moving, the hearing and hearing aids can increase the feeling of ambient control and security. Hearing aids play a very important role in daily life from a psychosocial perspective. Strategies are being developed to make everyday life work. Conclusion: Hearing, hearing aids and various assistive devices mean a lot to people with Usher type 2 in daily life. However, being dependent on technology and assistive devices to make everyday life work results in vulnerability if the technology does not work. Environmental factors are crucial for how information, communication and orientation and movement work. Strategies are being developed to save energy.
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